Since my last post my whole world has changed and literally turn upside down. You may recall that my husband, two children, and I sold practically everything we owned, sew machine excluded of course, to follow a dream and move to Beijing China. We set up shop just in time for for the arrival of baby number three, but due to a few question marks in our baby's health I flew back to the States with our nine day old, expecting to return to China with a wonder drug in about two weeks. Oh how wrong we were.
An MRI, 8 hour sleep study, and nasal scope later we learned baby Maaike was host to un--numberable cysts. Starting in her lower lip and tongue and following all the way down her trachea the cysts leave her only about 10% of usable airway. In a matter of days we found ourselves at our last resort and in the operating room.At one month old Maaike had a tracheostomy. Because of the locatation of Maaike's cyst's they are, for now, inoperable. With a safe airway via trach we hope to push out any proceedures until she is 3 or 4 years old, but only time will tell.
I spent a very long month in the states caring for Maaike and learning all the ins and outs of trach care while my husband and two other kids tried to maintain a life of work, school, and play without a mom in China. After 33 days my husband sold almost everything we owned again, sewing machine excluded again, and flew with our 5 year old and 2 1/2 year old over the ocean and back to me.
As long as Maaike has the trach we will be here in the States making new dreams. Just this week I turned on my sewing machine for the first time since her birth, 5 months now. I made Halloween costumes. It was wonderful and therapeutic. My sewing projects for the foreseeable future will probably be more on the simple side, so I hope you can be patient with me. We are carving out a whole new life, one stitch at a time, and I hope you will be along for the ride.