Today's post however is on yesterday's sewing project...arm restraints. Yes. I can't believe it either. Never in my wildest dreams did I think I would be sewing custom arm restraints for my daughter. But here we are.Every day I have to change out her trach ties (aka the straps that go around her neck to hold the tracheostomy in). I usually swaddle Maaike in a receiving blanket to get the job done, but she has now figured out how to wriggle her arms out. Last week as I was cleaning the wound area she got one of her arms out, reached up, and decannulated herself (aka pulled the tracheostomy out of her throat!)! I stayed calm and cool in the moment, but after I got it back in her neck I let myself have a freak out. As trach kids get older it becomes more common, often as an attention ploy, but 7 months is a little young for that. So, for now, arm restraints it is. But, at least I made it pretty!
I have so much to catch you up on. I have actually been sewing! Crazy I know. While my husband was back in China Kelli flew out to keep me company! It was awesome...minus Kelli throwing up on arrival and then getting the flu, but we both made three skirts while she was here. I shall post on them later when I have the time to go through the photos.